Buy your copy of PACEY's Caring For Children With SEND here.
Action For Kids
Action For Kids exists to support disabled children and young people to live the life they want - just like everyone else.
Action on Hearing Loss
Action on Hearing Loss is the new name for RNID. They are working for a world where hearing loss doesn’t limit or label people, where tinnitus is silenced and where people value and look after their hearing.
They want people to acknowledge their hearing loss and take action; more support for people with hearing loss; no one to be isolated through their hearing loss; people to protect themselves against hearing loss and tinnitus; to cure hearing loss and tinnitus.
Tel: 0808 808 0123 Textphone: 0808 808 9000
Asthma UK is the UK’s leading asthma charity. There are over five million people with asthma in the UK, and we’re here for them when they need us most.
They want to live in a world where asthma is no longer a daily battle for some and where no one dies from the condition. They are working to make this happen through world-leading research, award-winning information and services, and life-changing campaigns.
Tel: 0800 121 6244
Attention Deficit Hyperactivity Disorder (ADHD) Foundation
The ADHD Foundation works to; build a positive foundation for life; improve life chances through better understanding and management of ADHD; raise awareness and understanding of ADHD; bring about positive change and inclusion within policy and practice; support schools, GP's, youth justice services and other professionals who work with people living with ADHD.
They work in partnership with those living with ADHD, enabling them to understand and manage ADHD. Their team understand first-hand the issues around ADHD, sharing their experience and providing skill support and encouragement.
Tel: 0151 237 2661
Booktrust has created and administered a range of projects and campaigns designed to help people of all ages and backgrounds to enjoy reading and writing. They have both English and Welsh programmes aimed at supporting children’s literacy and include information on engaging parents in children’s learning.
Tel: 020 7801 8800
British Dyslexia Association (BDA)
As an umbrella organisation, the BDA want dyslexic people to view the BDA as the organisation that best represents them. So the work of the BDA aims to reflect the values that dyslexic people hold dear. They listen to, and act upon, the needs of dyslexic people.
Tel: 0333 405 4567
British Heart Foundation
The British Heart Foundation is the nation's heart charity and the largest independent funder of cardiovascular research. Coronary heart disease is the UK's single biggest killer but they are leading the fight against it. Their pioneering research has helped to transform the lives of people living with heart and circulatory conditions. Their work has been central to the discoveries of vital treatments that are helping to change the face of the UK's fight against heart disease.
Tel: 0300 330 3322
This website provides support by offering impartial information on a broad range of subjects related to Cerebal palsy.
Cornelia de Lange Syndrome
The CdLS Foundation exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime.
Tel: 01375 376 439
Down’s Syndrome Association
The Down’s Syndrome Association are the only organisation in this country focusing solely on all aspects of living successfully with Down’s syndrome. Since 1970, they have grown from being a local parent support group into a national charity with over 20,000 members. Their aim and mission it to help people with Down’s Syndrome live full and rewarding lives.
Tel: 0333 1212 300
The Dyspraxia Foundation is a country wide charity, founded in 1987 as the Dyspraxia Trust by two mothers who met at Great Ormond Street Hospital for Sick Children. After being told that their children had Dyspraxia they were astonished and dismayed to discover that no facilities existed to help or inform parents and children with the condition. They decided to form their own group to help others to help themselves.
Tel: 01462 454 986
Epilepsy Action is the UK’s leading epilepsy organisation and exists to improve the lives of everyone affected by the condition. Epilepsy can affect anyone at any age and from any walk of life. Epilepsy Action is there to support people every step of the way through living with the condition.
Tel: 0808 800 5050
Max Appeal is all about sharing, about hope and about standing with our families. Max Appeal was founded by parents of children diagnosed with DiGeorge Syndrome/VCFS/22q11.2 deletion. We are a small national charity, run almost exclusively by a group of dedicated volunteers backed up with a knowledgeable panel of medical professionals. Max had a short life but Max Appeal is a charity with a vibrant life of its own.
National Numeracy wants every person in the UK to reach a level of numeracy that allows them to meet their full potential. Even if parents don’t feel confident with maths, they can still make a huge difference to their child’s numeracy confidence and ability. The National Numeracy Parent Toolkit is available to view at www.nnparenttoolkit.com
Tel: 01273 915044
Royal National Institute for Blind People (RNIB)
RNIB offer support to everyone affected by sight loss. Whether they are losing sight or are blind or partially sighted, they offer practical and emotional support and can help you face the future with confidence.
RNIB are there from the moment you are diagnosed to help you get on with your life. From the day when you need them the most, until the day you’re living your life again.
Tel: 0303 123 9999
SEN Magazine is a glossy, full colour magazine published every two months and packed full of interesting and authoritative features, news and articles covering all issues to do with SEN and disability. It's essential reading for teachers, SENCOs, carers, parents, therapists and all practitioners in special needs.
The National Autistic Society
They are the leading UK charity for people with autism (including Asperger syndrome) and their families. They provide information, support and pioneering services, and campaign for a better world for people with autism.
Tel: 020 7833 2299